“Other Stakeholder”

The sources must be cited with the text to include author and date.

To help you consider the influential other stakeholders for the HAE Rare Disease, this writing assignment is for you to identify one other stakeholder and write a one-page summary about it to include its home office location, number of people involved, background of members, etc. Other stakeholders can be disease-specific organizations or other stakeholders such as payers, physicians groups, organizations seeking a cause (e.g, Susan Komen and the NFL) or providing a service (e.g., Uber delivering emergency products or injection components to a patient.)

HAEi
Stakeholder Site:

Who is HAEi


New Program: https://angioedemanews.com/2020/07/17/hae-international-translates-emergency-card-into-34-languages/
Non profit (stakeholder) launched day of awareness: https://www.pharmiweb.com/press-release/2020-05-16/pharming-celebrates-hae-day

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